I received my brain MRI results. Normal, no evidence of metastatic breast cancer. Yeah! Just another confidence booster.
I feel like I slept the whole weekend. Nausea was totally controlled by the meds so I ate better than last time.
My blood sugar control was much better than round one, but the fatigue has been overwhelming. Three hour naps and early bedtimes each day.
So I’m off to bed!
Last night I did better than after treatment 1. I turned the air conditioning down a few degrees and was able to sleep without taking any Benadryl.
I got my first Neulasta injection this morning. And the syringe wasn’t gold, it was a disappointing blue prefilled disposable plastic. I expected it to be gold and monogrammed based on the anticipated cost.
It was an easy injection in my stomach, similar to taking an insulin injection.
I didn’t notice any side effects during the day. After work I went home to take an early evening power nap and when I was finished I noticed the back of my head was sore where it touched the pillow. I only laid down on the couch for 30 minutes so I didn’t understand it.
At night I couldn’t sleep and couldn’t figure out why. My right hip hurt. So I turned over. And my left shoulder hurt. So I turned over. And over, and over. I still can’t sleep on my stomach or totally on my sides from surgery. I still have internal sutures and sore spots. With the implants I’m not sure if stomach sleeping will be possible again.
Around 6:30 my alarm went off and I had an epiphany. They told me I might have bone and joint pain from the Neulasta. If I had remembered this last night I could have taken some Tylenol. It worked in the morning.
Next time, along with nausea meds and insulin (so much insulin) I’ll take Tylenol.
I took 15 pills this morning.
I almost didn’t get treatment #2. This morning my pre-treatment bloodwork showed a really low white blood cell count. Much lower than they expected. That means I’m severely immunocompromised and at high risk of infection. They gave me the chemo but I have to return tomorrow for an injection of Neulasta, a white blood count booster. I’ll get it after chemo each time.
Neulasta is billed at anywhere between $3000-$10,000 per in injection. Unfreakingbelievable. It must be delivered in a golden syringe.
I saw the PA and was advised to stay away from germs for a while. I’m trying to practice germ precautions. Lots of hand sanitizer, hand washing and avoiding hugs, kisses handshakes and snotty or hacking people. You can give me an elbow bump.
The chemo infusion was pretty easy and I don’t even have an IV bruise. Treatment #1’s bruise was huge and lasted 3 weeks. It disappeared the day before #2.
Afterward I went to work and just waited for the steroids to start increasing my blood sugar. Steroids are like diabetic kryptonite. It started going up in the evening. That’s when I discovered my pump only goes up to 200% insulin dose for a temporary basal rate. My plan is to start on chemo day 1 with a 300% basal rate and then step it back down to the normal 100% over 4-5 days. I had to create a new basal pattern and manually program it until I got below 200%. Medtronic, please increase the temp basal max!
Feeling good this evening and hoping it continues tomorrow. I put a pink streak in my hair again today for good luck.
I received a lovely surprise from these ladies today. My college friends sent me a great shirt, bracelet, and a Dunkin Donuts gift card to feed my donut habit. They also included an Amazon card to feed my Kindle habit and followed up with a list of recommended trashy novels. I use the term “novel” loosely, but when you are sitting around being pumped full of toxic chemicals a trashy novel is just the thing you need 😉.
They also wrote me a poem.
“Roses are red, violets are blue, your college friends are slackers so this is just getting to you.”
I love these ladies! We met the first day of college and have been through everything together.
Check us out then and now, 1995 and 2014. Same bar. Same counter. I was impressed we could all still get up there easily, but in my opinion we are aging well (except for the cancer thing)!
I went to see one of my many “ologists” today, my neurologist. I get migraine headaches, always have, and recently had him switch my migraine meds in order to take another med prescribed by a different doctor.
When I visited him this morning he recommended that I get a brain MRI because I have never had one and breast cancer is one of the types of cancer that can metastasize to the brain. This is incredibly unlikely for my stage one cancer but I think it’s CYA for him.
I hate MRIs. Technically I hate small enclosed spaces, like MRI machines. But I agreed to the MRI if I could have either the open machine or drugs to prevent a panic attack in the tunnel. I barely made it through the only MRI I’ve ever had a few years ago.
I’ve already met my annual out of pocket max, so let the testapalooza begin. I’m sure I’ll be tested for anything and everything in the future.
Luckily there is an open machine imaging center literally across the street from my office.
I went back to work yesterday. I worked from home because the kids didn’t have school and all I had scheduled was an entire morning of conference calls and then cleaning out my email.
It’s the end of day two and I’m still not caught up on email. It was great to get back in the office and see everybody today.
They brought me an edible arrangement (I love these) and balloons to celebrate my return.
I also got to visit with another woman who works on my floor who is going through breast cancer treatment. I find it shocking that there are so many of us going through this an I hate this is happening to her but I’m happy to have a sister on my journey..
I left early and picked up my kids from carline. They weren’t happy because they wanted to go to aftercare.
I was surprised when I got home at four and promptly fell asleep on the couch for an hour. The only reason I woke up is that I had set an alarm reminder to put dinner in the oven.
Luckily I had saved some food people brought in the freezer and we had a great lasagna and fruit dinner and all I had to do was put it in the oven.
Thank you to my great support system for keeping us fed and healthy so I can take a post work nap!!!